Take the #LarsonLove challenge. Know the signs of #Marfan syndrome. Visit marfan.org/larsonlove
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Take the #LarsonLove challenge. Know the signs of #Marfan syndrome. Visit marfan.org/larsonlove
2.2K views4 months ago
YouTubeThe Marfan Foundation
Tiffany is mom to a child living with neonatal Marfan syndrome. Her real asks for kindness and understanding that some physical symptoms can be nearly invisible, yet very much life-changing. Learn more. https://marfan.org/conditions/neonatal-marfan/ | The Marfan Foundation
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Tiffany is mom to a child living with neonatal Marfan syndrome. Her real asks for kindness and understanding that some physical symptoms can be nearly invisible, yet very much life-changing. Learn more. https://marfan.org/conditions/neonatal-marfan/ | The Marfan Foundation
1.3K viewsFeb 20, 2024
FacebookThe Marfan Foundation
If you have the signs of Marfan syndrome, learn more.
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If you have the signs of Marfan syndrome, learn more.
2.5K viewsFeb 5, 2024
YouTubeThe Marfan Foundation
Thank you for sharing your Marfan syndrome, Michael! We're so proud of you for getting your heart checked every year. | The Marfan Foundation
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Thank you for sharing your Marfan syndrome, Michael! We're so proud of you for getting your heart checked every year. | The Marfan Foundation
1.7K viewsFeb 27, 2021
FacebookThe Marfan Foundation
Jayla has turned her experiences with Marfan syndrome into a teachable moment, as an award-winning presenter through 4H. Thank you, Jayla, for helping save lives! | The Marfan Foundation
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Jayla has turned her experiences with Marfan syndrome into a teachable moment, as an award-winning presenter through 4H. Thank you, Jayla, for helping save lives! | The Marfan Foundation
1.4K viewsFeb 27, 2024
FacebookThe Marfan Foundation
Sky and her dad both live with Marfan syndrome and make check-ups a time for bonding! Our parent toolkit can help families navigate Marfan syndrome. https://marfan.org/resources/parent-toolkit/ | The Marfan Foundation
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Sky and her dad both live with Marfan syndrome and make check-ups a time for bonding! Our parent toolkit can help families navigate Marfan syndrome. https://marfan.org/resources/parent-toolkit/ | The Marfan Foundation
550 viewsFeb 19, 2024
FacebookThe Marfan Foundation
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge - Marfan Foundation
Raise Marfan Syndrome Awareness, Save Lives with the #LarsonLove Challenge - Marfan Foundation
4 months ago
marfan.org
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🔎 What About Marfans Presented by Dr. David Saperstein #shorts
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YouTubeCenter for Complex Neurology, EDS & POTS
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Anna gets real about Marfan lived experience & mental health. "You are not alone!" #marfanrealreels
550 viewsFeb 9, 2024
YouTubeThe Marfan Foundation
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Share to save lives: Know the Signs of Marfan Syndrome
343 viewsFeb 7, 2024
YouTubeThe Marfan Foundation
1:00
Arinya gets real about her journey with Marfan syndrome. #marfanrealreels
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YouTubeThe Marfan Foundation
1:45
What is Marfan syndrome?
528 views6 months ago
YouTubeChildren's Healthcare of Atlanta Cardiology
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Betsy focuses on the positive parts of living with Marfan syndrome. #marfanrealreels
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YouTubeThe Marfan Foundation
We love that swing, Beckett! Thanks for sharing what Marfan syndrome is to you. | The Marfan Foundation
956 viewsFeb 23, 2021
FacebookThe Marfan Foundation
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How does Marfan syndrome affect your body? Thanks for sharing this, @mrs.marfelous on Instagram! | The Marfan Foundation
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FacebookThe Marfan Foundation
3:11
Marfan Syndrome Signs and Early Recognition
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TikTokceladonofficial46
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Crystal gets real about her family's life alongside Marfan syndrome.
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YouTubeThe Marfan Foundation
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Marfan’s Syndrome made easy!
299 views5 months ago
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Nosha shares her family's journey with Marfan syndrome.
384 viewsFeb 1, 2024
YouTubeThe Marfan Foundation
1:37
Family raising awareness about Marfan syndrome after woman's death
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YouTubeCTV News
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2025 Year-End Greeting from Marfan Foundation President & CEO, Michael Weamer - Gratitude!
258 views8 months ago
YouTubeThe Marfan Foundation
2:58
Dr. Hal Dietz on the potential power of educating healthcare providers "to address a vulnerable aorta before it tears" for people living with rare conditions like Marfan syndrome: "What I would hope is through research advances and educational efforts, that dissection will become a remarkably rare event. Will we ever be able to completely prevent dissection? Perhaps not. But I think we can and we should do the most we can to make this a very unexpected rare occurrence." #AorticDissectionAwarenes
625 viewsSep 23, 2024
FacebookThe Marfan Foundation
1:15
Give now: marfan.org/impact 82 cents of every dollar you give supports research and education. And right now, a generous donor will match your gift - doubling your impact for people like Brenda. | The Marfan Foundation
6.9K views10 months ago
FacebookThe Marfan Foundation
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Stella & Irene Talk Stickler Syndrome - Introduction
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Understanding Marfan Syndrome in Children
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